BERKELEY, CA (UroToday.com) - Pinder and colleagues describe the development and validation of the Intermittent Self-Catheterization Questionnaire (ISC-Q).
The ISC-Q is a patient-reported outcome measure that evaluates quality of life for patients performing ISC. The questionnaire was developed using interviews with patients in the UK, France, and Germany who were diagnosed with neurogenic bladder dysfunction.
The ISC-Q is a 24-item instrument that covers 4 domains: ease of use, convenience, discreetness, and psychological well-being. The ISC-Q will need further testing as some of the questions may not be understood by all countries and cultures (e.g. The catheter is fiddly to use).
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Intermittent Self-Catheterization Questionnaire (ISC-Q)
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Strongly |
Slightly |
Neither |
Slightly |
Strongly |
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Ease of Use |
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1. It is easy to prepare my catheter for use each time I need it |
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2. It is messy to prepare my catheter for use |
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3. It is easy to insert my catheter |
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4. I find inserting the catheter is uncomfortable sometimes |
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5. The design of the catheter makes it easy to insert |
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6. The catheter is fiddly to use |
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7. The lubrication on the catheter makes it difficult to use |
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8. I feel confident in my ability to use my catheter |
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Convenience |
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9. Storage of catheters at home is inconvenient |
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10. Taking enough catheters for a weekend away is very inconvenient |
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11. Taking enough catheters for a 2-week holiday is very inconvenient |
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12. Disposal of my catheter is inconvenient when away from home |
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Discreetness |
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13. I find it easy to carry enough catheters around with me on a day-to-day basis |
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14. I find it easy to dispose of my catheter when I am away from home |
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15. My catheter is discreet |
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16. I can use my catheter discreetly when I am away from home |
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17. I can easily dispose of my catheter without it being obvious to people |
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18. My catheter allows me to feel confident when away from home |
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Psychological well-being |
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19. I am self-conscious about my need to self-catheterize |
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20. I would feel embarrassed if people saw my catheter in its packet |
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21. My need to use a catheter sometimes makes me feel embarrassed |
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22. I worry that my catheter doesn’t always empty my bladder fully |
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23. My need to use catheters stops me from visiting friends and family |
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24. I worry about the risk of long-term problems from using my catheter |
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Pinder B, Lloyd AJ, Elwick H, Denys P, Marley J, Bonniaud V
Reference: Clin Ther. 2012 Dec;34(12):2302-13
PubMed Abstract
PMID: 23178033
Written by Diane K. Newman, DNP, FAAN, BCB-PMD
