SUFU 2021: Patient Report of Intermittent Catheterization Experience (PRICE) Study

( This was a cross-sectional, multi-centered, clinical study of adult men and women performing intermittent self-catheterization (ISC) conducted in six clinical sites in the US. Eligible patients were English-speaking adults who had been independently performing ISC for at least 6 months.

Data collected included demographics, medical history, specific self-catheterization habits and two validated HR-QoL questionnaires: The Intermittent Self-Catheterization Questionnaire (ISC-Q) and the Intermittent Catheterization Difficulty Questionnaire (ICDQ). A total of 200 participants were recruited, 70% were male, 73.5% were caucasian and median age was 51 years. The ISC-Q showed that the majority of participants had confidence in their ability to perform ISC; yet, felt self-conscious about doing so and had concerns about long-term adverse effects. The satisfaction scores were high. The ICDQ indicated little difficulty with most daily ISC practices. Participants reported some difficulty with a “blocking sensation” during initiation of catheterization, leg spasticity, and painful catheterization.

Participants are confident with ISC and have little overall difficulty, which may be a product of successful education and catheter design. Urinary tract infections (UTIs) were common (yet variable in participants) and may contribute to the noted long-term ISC concerns.

References: Refs: Pinder, B., et al., Development and psychometric validation of the intermittent self-catheterization questionnaire. Clin Ther, 2012. 34(12): p. 2302-13; Guinet-Lacoste, A., et al., Validation of the InCaSaQ, a new tool for the evaluation of patient satisfaction with clean intermittent self-catheterization. Ann Phys Rehabil Med, 2014. 57(3): p. 159-68.

Presented by: Daniel Roberson, Ariana L. Smith, Justin Ziemba, Alan Wein, Rita G. Hamilton, Librada Callender, Leah Holderbaum, Tamara King, Angela Jackson, Thanh Tran, Hanna Stambakio, George Lin, Diane K. Newman, Division of Urology, Department of Surgery, University of Pennsylvania, Philadelphia, PA, Baylor Scott & White Institute for Rehabilitation, Dallas TX, Shepherd Multispecialty Clinic, Shepherd Center, Inc., Atlanta, GA, Department of Urology, University of South Florida, Tampa, FL

Written by: Diane K. Newman, DNP, CRNP, FAAN, BCB-PMD, Nurse Practioner and Co-Director, Penn Center for Continence and Pelvic Health Adjunct Professor of Urology in Surgery during the 2021 Society of Urodynamics, Female Pelvic Medicine & Urogenital Reconstruction (SUFU) Winter Meeting.