SUFU 2021: Identifying Patient-Centered Research Priorities in Overactive Bladder by Crowdsourcing

( The aim of this study was to use Amazon MTurk to identify research topics prioritized by patients with overactive bladder (OAB). Amazon MTurk is a crowdsourcing platform. Users were invited to complete a survey on OAB Research. The Overactive Bladder Awareness Tool – 3 item (OABV3) was used to screen participants. Those that scored 4 or greater took a research prioritization survey. The survey included a choice of 10 research topics in categories including patient-provider communication, diagnosis, treatment, and work/disability. The participants ranked their top 5 research priorities from most important to least important. In addition, basic demographic data, OAB-q SF validated questionnaire, fluid intake, diuretic use, duration, and bother of OAB symptoms were collected. 100 MTurk users that took the OAB-V3 screening questionnaire yielding 45 eligible and 38 were included in the analysis.

Participants had a mean age of 34±10 years old, were 66% female and 81% had at least a college degree. Half of the participants were white, 26% were Asian and 8% were black. Participants reported having symptoms for at least six months (58%), and symptoms that occur on at least half of the days of the year (47%). Additionally, 61% of participants have sought treatment for their OAB, a surprisingly high number. Participants had a mean OAB-q severity score of 51.0 and mean health-related quality of life score of 43.4. Participants categorized research categories: etiology (15%), treatment (14%) and implementing new findings (13%). The authors felt that Amazon MTurk offers a potentially valuable population to crowdsource research priorities in OAB.

Presented by: Aidan Kennedy, Riley Kennedy, Olga Goloubeva, Phillippe Zimmern, Rena Malik, University of Maryland School of Medicine, George Washington University Department of Computer Science, UT Southwestern Medical Center

Written by: Diane K. Newman, DNP, CRNP, FAAN, BCB-PMD, Nurse Practioner and Co-Director, Penn Center for Continence and Pelvic Health Adjunct Professor of Urology in Surgery during the 2021 Society of Urodynamics, Female Pelvic Medicine & Urogenital Reconstruction (SUFU) Winter Meeting.
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