The Patient Voice VL

In His Own Voice: His 15-Year Journey with Advanced Prostate Cancer - Steve Poggi

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Steve Poggi shares his personal journey with prostate cancer that started in 2005. Having lived with the metastatic castration-resistant prostate cancer for the past 15 years, he shares insight into his journey, confidence in his medical team, and how a positive attitude is the key to living a happy life with prostate cancer. Biographies: Steve Poggi, Prostate Cancer Patient Related Content: View:...

Making Your Treatment Decision - Prostate Cancer Patient Interview with Andy Schwartz

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(Length of Interview: 2 min) Andy Schwartz, a prostate cancer advocate, and survivor answers a series of questions and explains the importance of seeking information to better prepare yourself for prostate cancer treatment. 1. How did you go about making your treatment decision? 2. Did you feel that you had an adequate understanding of all the pros and cons of each treatment that was available to...

A Journey Shared: Testicular Cancer Survivor and Founder of The Testicular Cancer Society - Mike Craycraft

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Mike Craycraft, Testicular Cancer Survivor, Clinical Pharmacist and Founder of the Testicular Cancer Society joins Alicia Morgans in this special Testicular Cancer Awareness podcast. Mike shares what drove him to launch the Testicular Cancer Society, a nonprofit raising awareness for testicular cancer, promoting self-examination and helping survivors and caregivers navigate the diagnosis and treat...

The Prostate Cancer Journey - Robert Voss

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(Length of Interview: 13 min) Robert Voss, a 23-year prostate cancer survivor, shares why it is important to constantly educate yourself about the disease. Robert highlights the various ways to seek information from going to a teaching university hospital, searching the internet, to getting your significant other involved. 1. How did you go about making your treatment decision? 2. Did you feel tha...

In His Own Voice: His Journey with Prostate Cancer - Malcolm McKay

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(Length of Interview: 7 min) Malcolm McKay, a former school principal from Rochester, Minnesota, sits down and shares his prostate cancer story. Understanding his family history of prostate cancer led to Malcolm's participation in a clinical trial before ever being diagnosed. 1. How did you go about making your treatment decision? 2. Did you feel that you had an adequate understanding of all the p...

A Prostate Cancer Patient Journey, a Spouse's View - Becky McLain

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(Length of Interview: 4 min) As a partner of someone with prostate cancer, Becky McLain shares a glimpse of what it is like for her as a spouse of someone with prostate cancer and for her entire family after diagnosis. Biography: Becky McLain, spouse of a prostate cancer patient Read the Full Video Transcript

Becky McLain: My name is Becky McLain and I am here because my husband has prostate cancer. As a partner of someone going through prostate cancer, it's a different process, different perspective. No person is an island, and so even though they have that diagnosis, in a way you do as well because you walk alongside them. Or, your whole family is really involved. So, I think it's important to find support for yourself as well. Often as the mom or the partner, you're supporting your spouse but you're also trying to take care of children and helping them process emotion. So, it is important for you to find a group of people that you can just be raw and honest with, and not have to try to protect them. I think that's something important.

Each person is unique. What is going to bring energy to one might not to another, so I think you need to figure out yourself where you're going to get that strength and support. For me, my faith is huge. I couldn't do it without my faith. I have an incredible group of friends. We meet weekly. They have been a great source of strength. Try to walk, try to eat healthy. Those things, try to do that as well. I think the other thing is to celebrate. There is good in the midst of this, and to take those opportunities to celebrate. Little things are big things. I know when Mark was going through radiation, we had celebration Friday. He would have it five days, Friday was the last day that week, and we would do something fun. So, just to try to build those into life because life does continue.

Again, find that support. Make sure you're taking care of yourself. Also, I think communication. What that person is going to need from you is going to vary from day to day. It may not just be one thing. It might be multi-level. From one day it's, "I need you to listen to me," another day it's, "I want to forget about this. Let's just pretend it's not happening." So, being sensitive to that and communicating, I think that's important.

For me, I am an organized person so that felt natural to be the note-taker, and help put together a list of questions, also to consolidate the story because if you're going for a second opinion or you're switching doctors, you need to have that story. So, taking on that role. But again, I think you need to play to each others' strengths and figure out that piece. I also think it is, and I've said this too, just to have that second set of eyes and ears, and to be able to process that together later. My advice for someone going with someone would be, organize some questions. Organize your information. Take as many notes as you can, and you're writing fast and when you're in that moment, it feels overwhelming because there's so much, but then being able to process it together.

I would say, have hope. Have hope. It's a challenge, it's a journey, but there is also joy in the midst of it. So, never give up that hope.

A Prostate Cancer Patient Journey - Joseph Samulenas

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(Length of Interview: 3 min) Joseph Samulenas, a prostate cancer patient shares his journey through diagnoses, treatment decisions, and advice he would give himself as a newly diagnosed prostate cancer patient if he had the knowledge he has now. 1. How did you go about making your treatment decision? 2. Did you feel that you had an adequate understanding of all the pro and cons of each treatment t...

A Prostate Cancer Patient Journey - Mark McLain

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(Length of Interview: 3 min) Mark McLain, a prostate cancer patient has been battling prostate cancer for the last five years. He shares his journey through diagnoses, treatment decisions, the resources he found useful and the importance of educating yourself as a prostate cancer patient. In this intimate interview, he shares how helpful it was for him to share his story with other men with the sa...

A Patient's Perspective on the Treatment Landscape of Prostate Cancer - Robin Millman

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Robin Millman, a patient advocate, and 20+ year prostate cancer survivor shares a patient's perspective on the treatment landscape journey and hopes for the future of advanced prostate cancer treatment at the Advanced Prostate Cancer Consensus Conference (APCCC) 2019. Biographies: Robin Millman, a patient advocate, and 20+ year prostate cancer survivor Carmel Pezaro, BHB MBChB, FRACP, DMedSc, MHPE...

Testicular Cancer Awareness - A Conversation with Scott Petinga

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As a testicular cancer survivor and founder of the Center for Advocacy for Cancer of the Testes International (CACTI), Scott Petinga discusses with Charles Ryan, the importance of men to perform monthly self-exams, and seeking medical follow-up with urologists who are experienced in testicular cancer treatment if a suspicious lump or abnormality is suspected. Self-exams are the way most cases of t...