Patients are dissatisfied with information provision: perceived information provision and quality of life in prostate cancer patients

To determine the satisfaction with information received by prostate cancer survivors and associations with health-related quality of life (HRQoL) and illness perception.

A cross-sectional study was performed among 999 patients diagnosed between 2006 and 2009.

All patients received a questionnaire on HRQoL (EORTC QLQ-C30), illness perception (B-IPQ) and satisfaction with information provision (EORTC QLQ-INFO-25). Multivariate regression analyses were performed to assess the association between satisfaction with information provision and HRQoL as well as illness perception.

Response rate was 70% (N = 697), 34% (N = 222) indicated to be dissatisfied with the information received. Multivariate linear regression analyses showed a significant positive association between satisfaction with information provision and global health (P = 

A third of all prostate cancer survivors reported to be dissatisfied with the information received and scored worse on HRQoL and illness perception. A prospective randomized study is needed to study the effect of an intervention that improves information provision on HRQoL and illness perception outcomes. Copyright © 2015 John Wiley & Sons, Ltd.

Psycho-oncology. 2015 Sep 25 [Epub ahead of print]

Romy E D Lamers, Maarten Cuypers, Olga Husson, Marieke de Vries, Paul J M Kil, J L H Ruud Bosch, Lonneke V van de Poll-Franse

Department of Urology, St. Elisabeth Hospital, Tilburg, The Netherlands. , Department of Social Psychology, Tilburg University, Tilburg, The Netherlands. , CoRPS-Center of Research on Psychology in Somatic Diseases (CoRPS), Department of Medical Psychology and Neuropsychology, Tilburg University, The Netherlands. , Department of Social Psychology, Tilburg University, Tilburg, The Netherlands. , Department of Urology, St. Elisabeth Hospital, Tilburg, The Netherlands. , Departement of Urology, University Medical Center Utrecht, Utrecht, The Netherlands. , CoRPS-Center of Research on Psychology in Somatic Diseases (CoRPS), Department of Medical Psychology and Neuropsychology, Tilburg University, The Netherlands.

PubMed

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