Involving Patients in the Development and Evaluation of an Educational and Training Experiential Intervention (ETEI) to Improve Muscle Invasive Bladder Cancer Treatment Decision-making and Post-operative Self-care: a Mixed Methods Approach.

This study aims to describe the acceptability and feasibility of an educational and training experiential intervention (ETEI) we developed to enhance muscle invasive bladder cancer (MIBC) patients with treatment decision-making and post-operative self-care. Twenty-five patients were randomized to a control group (N = 8) or ETEI group (N = 17). ETEI group participated in a nurse-led session on MIBC education. The control group received diet and nutrition education. Study questionnaires were completed at baseline and at 1-month post-intervention. Our results showed acceptable recruitment (58%) and retention rates (68%). The ETEI group reported increased knowledge (82% vs. 50%), improved decisional support (64% vs. 50%), improved communication (73% vs. 50%), and increased confidence in treatment decisions (73% vs. 50%) compared to the control group. Patients in the control group reported improved diet (50% v. 27%) as well as maintaining a healthy lifestyle (67% vs. 45%) compared to the ETEI group. Patients in the ETEI group reported a significant decrease in cancer worries and increases in self-efficacy beliefs over time compared to the control group. The ETEI was feasible, acceptable, and showed a potential for inducing desired changes in cancer worries and efficacy beliefs.

Journal of cancer education : the official journal of the American Association for Cancer Education. 2019 Jun 07 [Epub ahead of print]

Nihal Mohamed, Tung Ming Leung, Qainat N Shah, Sailaja Pisipati, Donna L Berry, Emma K T Benn, Cheryl T Lee, Simon Hall, Reza Mehrazin, John Sfakianos

Department of Urology and Oncological Sciences, Icahn School of Medicine at Mount Sinai, 1425 Madison Avenue, New York, NY, 10028, USA. ., Department of Urology and Oncological Sciences, Icahn School of Medicine at Mount Sinai, 1425 Madison Avenue, New York, NY, 10028, USA., Albany Medical College, 43 New Scotland Ave., Albany, NY, 12208, USA., University of Nevada Reno School of Medicine, 1664 N Virginia St., Reno, NV, 89557, USA., Dana-Farber Cancer Institute, Harvard Cancer Center, 450 Brookline Ave., Boston, MA, 02215, USA., Department of Urology, Ohio State University, 915 Olentangy River Rd., Columbus, OH, 43212, USA., Smith Institute for Urology, 450 Lakeville Road, Lake Success, NY, 11042, USA.

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