Urinary incontinence is prevalent among patients receiving home hospice and presents multiple care management challenges for nurses and family caregivers.
This study sought to understand how urinary incontinence influences the psychosocial care of patients receiving home hospice and the strategies that nurses employ to maximize patient and family comfort.
Qualitative descriptive study using semi-structured interviews.
Nurses employed at a large not-for-profit hospice agency in New York City.
Analyses of 32 interviews revealed three primary themes. First, nurses considered urinary incontinence to be associated with multiple psychosocial issues including embarrassment for patients and caregiver burden. Second, nurses described urinary incontinence as a threat to patient dignity and took steps to preserve their continence function. Third, nurses assisted patients and their families to cope with urinary incontinence through normalization, reframing incontinence as part of the disease process, mobilizing caregiving assistance, and encouraging use of continence supplies such as diapers and liners.
Urinary incontinence influences the psychosocial care of patients receiving home hospice and nurses employ strategies to maximize patient and family comfort. Additional research is needed to examine the psychosocial benefits of facilitated discussions with patients and family members about incontinence, provision of caregiving support, and distribution of comprehensive incontinence supplies to patients with fewer resources.
Palliative medicine. 2021 Sep 03 [Epub ahead of print]
David Russell, Michelina D Stoddard, Natalie Morgan, Margaret V McDonald, Ritchell Dignam, Kathryn H Bowles, Holly G Prigerson, Bilal Chughtai
Department of Sociology, Appalachian State University, Boone, NC, USA., Department of Urology, Weill Cornell Medicine/New York Presbyterian, New York, NY, USA., Center for Home Care Policy & Research, Visiting Nurse Service of New York, New York, NY, USA., Visiting Nurse Service of New York, New York, NY, USA., Department of Medicine, Weill Cornell Medicine, New York, NY, USA.