Understanding Pain and Coping in Women with Interstitial Cystitis/Bladder Pain Syndrome (IC/BPS)

To examine a self-regulation and coping model for IC/BPS that may help us understand the pain experience of chronic IC/BPS patients.

The model tested illness perceptions, illness-focused coping, emotional regulation, mental health and disability in stepwise method using factor analysis and structural equation modeling. Step 1 explored the underlying constructs. Step 2 confirmed the measurement models to determine the structure/composition of the main constructs. Step 3 evaluated the model fit and specified pathways in the proposed IC-Self Regulation Model.

Female patients with urologist diagnosed IC/BPS were recruited and diagnosed across tertiary care centres in North America (n=217). The data was collected through self-report questionnaires. An IC/BPS self-regulatory model was supported. Physical disability was worsened by patient's negative perception of their illness, attempts to cope using illness-focused coping and poorer emotional regulation. Mental health was supported by perceptions that individuals could do something about their illness, using wellness-focused behavioural strategies, and adaptive emotion regulation.

The results clarify the complex and unique process of self-regulation in women suffering from IC/BPS, implicating cognitive and coping targets, and highlighting emotional regulation. This knowledge will help clinicians understand and manage these patients' distress and disability. This article is protected by copyright. All rights reserved.

BJU international. 2017 Apr 07 [Epub ahead of print]

L Katz, D A Tripp, L K Carr, R Mayer, R M Moldwin, J C Nickel

Michael G. DeGroote Pain Clinic, McMaster University Medical Centre, ON, Canada., Departments of Psychology, Anesthesiology and Urology, Queen's University, ON, Canada., Sunnybrook Health Sciences Centre, Toronto, ON, Canada., University of Rochester, Rochester, NY, USA., The Smith Institute for Urology, New York, USA., Department of Urology, Queen's University, ON, Canada.