Bladder pain syndrome (BPS) is classified as a rare chronic debilitating disease and its diagnosis presents a challenge because its symptoms overlap with those associated with overactive bladder syndrome. The aim of the routine study was to estimate the prevalence of BPS and discover to study the profile of symptoms and clinical practice for patients attending functional urology and urodynamics units.
An epidemiological study in which 37 functional urology and urodynamics units in Spain participated. The prevalence was studied in both sexes. Clinical practice was evaluated for 319 women with BPS (new diagnosis or under review). Clinical and sociodemographic data were collected retrospectively. The results were studied of urine tests, cystoscopy, biopsy, physical examination, bladder diary, and those of the four available questionnaires: Patient Perception of Bladder Condition; Bladder Pain/Interstitial Cystitis Symptom Score; EuroQoL-5 Dimensions-5L and Patient Global Impression of Severity.
Five point four percent (503) of the patients who attended these units (9,312) had a diagnosis of BPS (90%  females). The tests that were performed most according to the clinical history and anamnesis were: urine test, bladder ultrasound and cystoscopy. The most common symptoms/comorbidities were: pain in the bladder region, increased urinary frequency, nocturia, anxiety and depression. Diagnostic assessment determined pain on hydrodistension (86.9%), positive biopsy (59.2%), myofascial pelvic pain (28.4%), urological phenotype (97.8%), and increased urinary frequency (88.7%). The questionnaires reflected how much the quality of life of these patients was affected.
The prevalence of BPS in functional urology and urodynamics units in Spain is low. No homogeneity was observed in terms of diagnosis between the different participating centres. Therefore, a common methodology is required for the management of patients with BPS in these units, with tools specific to this disorder.
Actas urologicas espanolas. 2018 Sep 24 [Epub ahead of print]
G Morales-Solchaga, C Zubiaur-Libano, L Peri-Cusí, J M Adot-Zurbano, S Arlandis-Guzmán, A Franco-de Castro, C Castillejo, Grupo de Investigación de Resultados en Salud en Urología Funcional y Urodinámica (Grupo IFU)
Servicio de Urología, Hospital de La Ribera, Alzira, España. Electronic address: ., Servicio de Urología, Hospital de Basurto, Bilbao, España., Servicio de Urología, Hospital Clínic i Provincial, Barcelona, España., Servicio de Urología, Hospital Universitario de Burgos, Burgos, España., Servicio de Urología, Hospital Universitario y Politécnico La Fe, Valencia, España., Astellas Pharma SA, Madrid, España.